PKU Patient Registry

The PKU Patient Registry is a platform for people with PKU from around the world to strengthen their voices and share information about PKU, a genetic disease that can cause toxic neurological defects due to the build up of the amino acid, phenylalanine. PKU currently has no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve care for people with PKU. Join now and let your data tell your story!

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