Back To Care

PKU can affect how you think, feel and act. Have you or a loved one with PKU been:

  • Feeling foggy or confused?
  • Having trouble keeping a job?
  • Experiencing strained relationships?

It could be the PKU.

Back to Care is here to help! In case you missed it, the Back to care program provides resources and support to help you or a loved one return to care.

Visit to learn more!

Save the Date for the 2018 NPKUA Conference

Mark Your Calendars!  The fifth NPKUA Conference will be held on August 5-8, 2018 in Atlanta, GA.  The conference will bring together more than 600 PKU families, adults and professionals to learn about the latest in PKU research, new therapies and best practices in daily management.  

For more information click here


Press Release

Click here to read the full PKU Patient Regisitry press release.