News

Female Reproductive and Maternal PKU Surveys Video

Learn how easy it is to complete both the Female Reproductive and Maternal PKU Surveys.

 

 

Diet and Treatment Survey Video

Learn how easy it is to complete the Diet and Treatment Survey.

 

 

Information Gathering Tool

Use this form to help gather your informaiton to be entered into the Regisitry:  Click here for tool

PKU Patient Registry Overview Video

Learn how easy it is to navigate through the PKU Patient Registry.

 

 

May Is PKU Awareness Month

May 2017 is an exciting month for the NPKUA. As we focus on PKU Awareness Month we challenge the PKU Community to enroll in the PKU Patient Registry and for those who have already registered we encourage you to complete surveys. The PKU Patient Registrylaunched in January and we have already over 500 registrants. We would like to reach 700 by May 31, 2017. By participating in the registry you can also see how your experiences and data compare with others through instant reporting tools. Your information can accelerate research, it starts with you!

To find out more about PKU Awareness Month how you can get involved click here.